Sunday, October 19, 2008

Fibromyalgia

I was considering joining this Fibromyalgia Study Group.
I saw a commercial talking about Fibro and they gave
out their phone number and website " IFeelPain.com
Hmmm, maybe that will be the answer. I pulled up the
website and filled out the info on it and waited for
them to call me... A week later they did and we chatted
for awhile and set up an appt. They sent me all the
information that I was supposed to read over and
I needed to bring it back to sign up as one of their
guinee pigs... :^)  It wasn't going to cost me a thing
and at first I thought " WHY NOT " until I started
reading the material... Even though I feel crappy
50% of the time maybe more, depending on the day...
but when they started listing off all of the side effects
weight gain ( I just signed up with Jenny Craig for a
10 week program and just lost 5 pounds in the first
week.... noooo i am not going to take the chance of
weight gain Thank You Very Much ) headaches,
depression, blurry vision, Urinary Tract Infection, 
Stroke, Accidental Injury, Chest Pain, also they claim
You may not get better during the study or you may
get worse.... HELLO..... oh how about this one.....
If you do feel relief and these drugs help you.... 
after being with the program after 3 1/2 months,
they take you off the pills and you are on your own
again... WHAT !!!!!   how crazy does that sound....
I only gave you a FEW of the side effects, but
I am not going to take any chances with this program.

I would love to hear of anyone who is taking any
prescriptions that are actually helping them.  I
am on  Trazadone/Desyrel 50 MG  right now and
am not feeling much difference, but it has only been
a couple weeks.

My husband has been great.... We went to Sleep Train
Mattress Store and ordered a Tempurpedic Bed which
has had great reviews and a few of our relatives swear
by them that it has helped there insomnia and back
pain.   If anybody has one I would love to hear if it
has helped you.

http://www.tempurpedic.com

Sunday, October 12, 2008

Do you have Fibromyalgia

I have been diagnosed with Fibromyalgia.  I actually was diagnosed with this disease 10 years ago while in its early stages, but we didn't know a whole lot about it. Most Drs thought it was all in your head.

I am looking for other people who are suffering with Fibromyalgia to have a support
group on here. It might be helpful to have people talk about their condition and maybe
have some ideas on how to make their day easier to cope with. Someone might also
have some answers that we don't have.

I am going on 49 in November and my Fibromyalgia pain and symptoms have really
flared up in the last year. I have suffered with headaches, chest pains, dizziness,
Fibrofog, neck pain, insomnia, depression, fatigue, achiness and morning stiffness.

I have found some good websites on google explaining the symptoms and some
treatments. I get a massage twice a month and I am on some pain medication,
but so far I am getting no relief.

I do try hard to exercise 30 minutes a day whether it is walking my dogs, walking
on a treadmill or riding an exercise bike... I also try to lay on the floor to stretch
out.

But I would love to get some feedback from anyone who might have some answers
on how to deal with the pain day to day.

Laura